We got the first full week of casting under our belt and Elliott rocked it from beginning to end! Moving into week two and he got to change up the color of the cast, and guess what he chose??? In the words of Elliott, “OOOOOO!” This week, he sprung for orange. I was a littleContinueContinue reading “Week 2 – Cast”
Category Archives: Uncategorized
“Oh no! What happened to his leg?”
This question, this scenario, the attention that would be brought to his leg. All of this was the single most thing I feared last fall when we first got the CP diagnosis. How would I handle it? How would I teach Elliott about what he has? How would I field these questions and either navigateContinueContinue reading ““Oh no! What happened to his leg?””
Casting-Week 1
“With this new day comes new strength and new thoughts”Eleanor Roosevelt The Monday after snow-pocolypse, the orthopedic team made us a priority to get seen. We were scheduled for both physical therapy and casting, immediately. When the appointments were made I was anxious and uneasy. I would have much preferred time to prepare both ElliottContinueContinue reading “Casting-Week 1”
Delays
Whew!! It has been a very action packed few weeks… If you haven’t heard, a little something called snow-pocolypse hit Austin and the whole city (ahem, STATE) shut down. We were originally scheduled for Elliott to get his first cast put on February 15. He was going to have physical therapy appointment that morning toContinueContinue reading “Delays”
Let me tell you about my best friend
People, let me tell you ’bout my best friendHe’s a warm-hearted person who’ll love me to the endPeople let me tell you ’bout my best friendHe’s a one-boy, cuddly toyMy up, my down, my pride and joy People, let me tell you ’bout him, he’s so much funWhether we’re talkin’ man to manOr whether we’reContinueContinue reading “Let me tell you about my best friend”
Dear God…Can you hear me?
Will I always have to wonder what is “normal” (I HATE USING THAT WORD) Vs. could this behavior be a result of his brain injury? Will my hard days always be so debilitating that I feel dysfunctionally stressed out? If asked, how will I handle telling other kids what Elliott’s brace is, without Elliott feelingContinueContinue reading “Dear God…Can you hear me?”
Botox
This week we got the botox injection in Elliott’s leg and no surprises here, he handled it like a champ. Leading up to this appointment I was equal parts anxious and equal parts ready. I have noticed in pretty good detail over time how my body responds to trauma, stress, anxiety, feelings of being overwhelmed,ContinueContinue reading “Botox”
The Plan
We have hit the ground running and are kicking off 2021 with a bang! The type of cerebral palsy (CP) Elliott has is hemiplegia/hemiparesis spastic CP. Spastic CP is by far the most common type with about 70-80% of cases. People with hemiplegia/hemiparesis mean that one side of the body is affected and the spasticityContinueContinue reading “The Plan”
Mental Shift
When life feels impossibly hard, it is ok to take a minute. You do not have to have it all figured out right away and you can (and should) allow yourself time to experience the feelings, or stages, of grief. This is normal. I needed help and I needed to stop being afraid to askContinueContinue reading “Mental Shift”
A week in the life…
The first week at home from the hospital I was managing dozens of calls with doctors, specialists and therapists. This was clearly not ‘normal,’ postpartum activity, but it was our normal. As far as it goes with Elliott we have always fielded numerous appointments a week. Over the years, we have been able to slowlyContinueContinue reading “A week in the life…”