“Oh no! What happened to his leg?”

This question, this scenario, the attention that would be brought to his leg. All of this was the single most thing I feared last fall when we first got the CP diagnosis. How would I handle it? How would I teach Elliott about what he has? How would I field these questions and either navigateContinueContinue reading ““Oh no! What happened to his leg?””

Let me tell you about my best friend

People, let me tell you ’bout my best friendHe’s a warm-hearted person who’ll love me to the endPeople let me tell you ’bout my best friendHe’s a one-boy, cuddly toyMy up, my down, my pride and joy People, let me tell you ’bout him, he’s so much funWhether we’re talkin’ man to manOr whether we’reContinueContinue reading “Let me tell you about my best friend”

Dear God…Can you hear me?

Will I always have to wonder what is “normal” (I HATE USING THAT WORD) Vs. could this behavior be a result of his brain injury? Will my hard days always be so debilitating that I feel dysfunctionally stressed out? If asked, how will I handle telling other kids what Elliott’s brace is, without Elliott feelingContinueContinue reading “Dear God…Can you hear me?”

A week in the life…

The first week at home from the hospital I was managing dozens of calls with doctors, specialists and therapists. This was clearly not ‘normal,’ postpartum activity, but it was our normal. As far as it goes with Elliott we have always fielded numerous appointments a week. Over the years, we have been able to slowlyContinueContinue reading “A week in the life…”